Abstract
Health services research (HSR) is the research field that seeks to examine systematically the organisation, provision, and financing of health care services. There currently is only a rudimentary HSR capacity in the area of spinal cord injury (SCI). To a large extent, the HSR community has not addressed issues concerning persons with SCI, and the disability research and medical rehabilitation communities have not considered issues of HSR that affect the SCI population. However, due to recent changes in (1) the clinical management of SCI; (2) the expectations of persons with SCI, and (3) health care delivery and finance, the time is now ripe for the development of a HSR capacity in SCI. This article summarises current efforts at HSR in SCI in the United States, which have been primarily in the areas of trauma care and medical rehabilitation. It considers an agenda for future health services research in SCI, which must include research on post-rehabilitation health care and personal assistance needs. Finally, this article suggests strategies for developing a comprehensive HSR capacity in SCI.
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References
Baker S P, O'Neill B, Haddon W, Long W B 1974 The injury severity score: A method for describing patients with multiple injuries and evaluating emergency care.' The Journal of Trauma 14: 3.
Batavia A I 1988 The payment of medical rehabilitation services: Current mechanisms and potential models. American Hospital Association, Chicago, 1988.
Batavia A I 1989 The payors of medical rehabilitation: Eligibility, coverage, and payment policies. National Association of Rehabilitation Facilities, Washington, D.C. 1989.
Batavia A I, DeJong G 1990 Developing a comprehensive health services research capacity in physical disability and rehabilitation. Journal of Disability Policy Studies 1(1) 1990: 37–61.
Batavia A I, DeJong G, Burns T J, Smith Q W, Melus S, Butler D 1989 A managed care program for working-age persons with physical disabilities: A feasibility study. National Rehabilitation Hospital Office of Research, Washington, D.C.
Batavia A I, De Jong, G, Halstead L, Smith Q W 1988 The primary medical needs of people with disabilities. American Rehabilitation 14(4): 9–12.
Burnside I D, Cook J B 1976 Factors influencing readmission to hospital. Paraplegia 14: 220–224.
Champion H S, Sacco W J, Carnazzo A J, Copes W S, Fouty W J 1981 Trauma Score. Critical Care Medicine 9: 9.
DeJong G 1979 Independent living: from social movement to analytic paradigm. Archives of Physical Medicine and Rehabilitation 60: 435–446.
DeJong G 1981 Environmental Accessibility and Independent Living Outcomes: Directions for Disability Policy and Research. Michigan State University, University Center for International Rehabilitation, East Lansing, Michigan.
DeJong G, Wenker T 1983 Attendant care as a prototype independent living service. Caring 2(2): 26–30.
DeJong G, Osberg J E, McGinnis G E, Seward M L, Branch M L, Campion L G 1987 Rehospitalization Following Rehabilitation, Part II: Findings and Analysis. Based on a paper presented at the Annual Meetings of the American Congress of Rehabilitation, Baltimore, MD. 1986 (In submission).
DeJong G, Batavia A I 1989 Societal duty and resource allocation for persons with severe traumatic brain injury. Journal of Head Trauma Rehabilitation 4(1): 1–12.
DeJong G, Batavia A I, Griss R 1989 America's neglected health minority: Working-age persons with disabilities. The Milbank Quarterly, 67 (Supp. 2, Part 2) (In press).
Flook E E, Sanazaro D J (eds) 1973 Health services research and R & D In Perspective, Health Administration Press, Ann Arbor, Michigan.
Fuhrer M J 1988 Rehabilitation Research in the 1980s. In: Advances in Clinical Rehabilitation: Volume II (Eisenberg, MG and Grzesiak, RC, editors), Springer Publishing Co.
Johnston M, Keith R A . 1983 Cost benefits of Medical Rehabilitation: Review and Critique. Archives of Physical Medicine and Rehabilitation 64: 147–154.
Litvak S, Zukas H, Heumann J E 1987 Attending to America: Personal Assistance for Independent Living. World Institute on Disability, Berkeley, CA, USA.
Meyers A R, Feltin M, Masters R J, Nicastro D, Cupples A, Lederman R I, Branch L G 1985 Rehospitalisation and spinal cord injury: Cross-sectional survey of adults living independently. Archives of Physical Medicine and Rehabilitation 66: 704–10.
Mahoney C W, Estes C L, Heumann J E 1986 Toward a Unified Agenda: Proceedings of a National Conference on Disability and Aging. San Francisco: Institute For Health and Aging, University of California at San Francisco, USA.
Meyers A R, Cupples A, Lederman R I et al 1987 A prospective evaluation of the effect of managed care on medical care utilization among severely disabled independently living adults. Medical Care 25(11): 1057–1068.
Meyers A R, Cupples A, Lederman R I et al 1988 The epidemiology of medical care utilization by severely disabled independently-living adults. Journal of Clinical Epidemiology 41(2): 163–172.
Ohry A, Schemesh Y, Rozin R 1983 Are chronic spinal cord injured patients prone to pre-mature aging? Medical Hypotheses 11: 467–469.
Stover S L, Fine P 1986 Spinal cord injury: The facts and figures. Birmingham, Alabama: National Spinal Cord Injury Research Data Center, University of Alabama.
Trieschmann R B 1987 Aging With a Disability. New York: Demos Publications.
Young J S, Burns P E, Bowen A M, McCuthchen, R 1982 Spinal Cord Injury Statistics: Experience of the Regional Model Spinal Cord Injury Systems. Phoenix, AZ: Good Samaritan Medical Center. National Spinal Spinal Cord Injury Data Research Center.
Young J S, Northup A E 1979 Rehospitalisation in Years Two and Three Following Spinal Cord Injury. SCI Digest 1: 21–26.
Zawadski R, Shen J, Yordi C, Hansen J C 1985 On Lok's Community Care Organization for Dependent Adults: Research and Development Project—Final Report (1978–1983) On Lok Senior Health Services, San Francisco.
Zook C J, Moore F D 1980 High Cost Users of Medical Care. The New England Journal of Medicine 302: 996–1002.
Zook C J, Sav:ckis S F, Moore F D 1980 Repeated Hospitalized for the Same Disease: A Multiplier of National Health Costs. Milbank Memorial Fund Quarterly 58(3): 454–471.
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Dejong, G., Batavia, A. Toward a health services research capacity in spinal cord injury. Spinal Cord 29, 373–389 (1991). https://doi.org/10.1038/sc.1991.53
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DOI: https://doi.org/10.1038/sc.1991.53
