Table 4 UPDRS Survey.
From: The mPower study, Parkinson disease mobile data collected using ResearchKit
Question | Variable name | Variable details |
|---|---|---|
How good or bad is your health TODAY (0 means the worst health you can imagine, 100 means the best health you can imagine)? | EQ-5D1 | sliding scale from 0-100 |
Over the past week, how many times did you do the following kinds of exercise for more than 15 minutes? Strenuous exercise (heart beats rapidly): | GELTQ-1a | integer input |
Over the past week, how many times did you do the following kinds of exercise for more than 15 minutes? Moderate exercise (not exhausting): | GELTQ-1b | integer input |
Over the past week, how many times did you do the following kinds of exercise for more than 15 minutes? Minimal effort: | GELTQ-1c | integer input |
During your leisure time in the past week, how often do you engage in any regular activity long enough to work up a sweat (heart beats rapidly)? | GELTQ-2 | one of: {‘Often’, ‘Sometimes’, ‘Never/Rarely’} |
Over the past week have you had problems remembering things, following conversations, paying attention, thinking clearly, or finding your way around the house or in town? | MDS-UPDRS1.1 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week have you felt low, sad, hopeless, or unable to enjoy things? | MDS-UPDRS1.3 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week have you felt nervous, worried or tense? | MDS-UPDRS1.4 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you felt indifferent to doing activities or being with people? | MDS-UPDRS1.5 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you had trouble going to sleep at night or staying asleep through the night? Consider how rested you felt after waking up in the morning. | MDS-UPDRS1.7 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you had trouble staying awake during the daytime? | MDS-UPDRS1.8 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you had problems with your speech? | MDS-UPDRS2.1 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you usually had troubles handling your food and using eating utensils? For example, do you have trouble handling finger foods or using forks, knives, spoons, chopsticks? | MDS-UPDRS2.4 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you usually had problems dressing? For example, are you slow or do you need help with buttoning, using zippers, putting on or taking off your clothes or jewelry? | MDS-UPDRS2.5 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you usually been slow or do you need help with washing, bathing, shaving, brushing teeth, combing your hair, or with other personal hygiene? | MDS-UPDRS2.6 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have people usually had trouble reading your handwriting? | MDS-UPDRS2.7 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you usually had trouble doing your hobbies or other things that you like to do? | MDS-UPDRS2.8 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, do you usually have trouble turning over in bed? | MDS-UPDRS2.9 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you usually had shaking or tremor? | MDS-UPDRS2.10 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, have you usually had problems with balance and walking? | MDS-UPDRS2.12 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |
Over the past week, on your usual day when walking, do you suddenly stop or freeze as if your feet are stuck to the floor? | MDS-UPDRS2.13 | one of: {‘Normal’, ‘Slight’, ‘Mild’, ‘Moderate’, ‘Severe’} mapping to {0, 1, 2, 3, 4} |