Advanced search

Filter By:

Journal Check one or more journals to show results from those journals only.

Choose more journals

Article type Check one or more article types to show results from those article types only.
Subject Check one or more subjects to show results from those subjects only.
Date Choose a date option to show results from those dates only.

Custom date range

Clear all filters
Sort by:
Showing 1–6 of 6 results
Advanced filters: Author: Stephanie Russo Carroll Clear advanced filters

  • Indigenous Peoples are increasingly being sought out for research partnerships that incorporate Indigenous Knowledges into ecology research. In such research partnerships, it is essential that Indigenous data are cared for ethically and responsibly. Here we outline how the ‘CARE Principles for Indigenous Data Governance’ can sow community ethics into disciplines that are inundated with extractive helicopter research practices, and we provide standardized practices for evolving data and research landscapes.

    • Lydia Jennings
    • Talia Anderson
    • Stephanie Russo Carroll
    Comments & Opinion
    Nature Ecology & Evolution
    Volume: 7, P: 1547-1551

  • For many neurodevelopmental disorder (NDD) risk genes, the significance for mutational burden is unestablished. Here, the authors sequence 125 candidate NDD genes in over 16,000 NDD cases; case-control mutational burden analysis identifies 48 genes with a significant burden of severe ultra-rare mutations.

    • Tianyun Wang
    • Kendra Hoekzema
    • Evan E. Eichler
    ResearchOpen Access
    Nature Communications
    Volume: 11, P: 1-13

  • Using the National Ecological Observatory Network (NEON) as an example, this perspective discusses actions that recognize the sovereign rights of Indigenous Peoples and support better research across all Earth Sciences.

    • Lydia Jennings
    • Katherine Jones
    • Stephanie Russo Carroll
    ReviewsOpen Access
    Nature Communications
    Volume: 16, P: 1-9

  • In this Perspective article, the authors discuss how Indigenous Peoples' desires for greater involvement and oversight when participating in genomic research projects can be balanced against calls for unrestricted data access. They provide practical recommendations for the handling and sharing of Indigenous genomic data, with the aim of achieving mutual benefit for the research community and participating Indigenous communities.

    • Maui Hudson
    • Nanibaa’ A. Garrison
    • Stephanie Russo Carroll
    Reviews
    Nature Reviews Genetics
    Volume: 21, P: 377-384

  • As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples’ rights to control and access their data within these data environments remain limited. Operationalizing the FAIR Principles for scientific data with the CARE Principles for Indigenous Data Governance enhances machine actionability and brings people and purpose to the fore to resolve Indigenous Peoples’ rights to and interests in their data across the data lifecycle.

    • Stephanie Russo Carroll
    • Edit Herczog
    • Shelley Stall
    Comments & OpinionOpen Access
    Scientific Data
    Volume: 8, P: 1-6