Living with childhood glaucoma is an enormous challenge. Involving children and their carers on this journey helps to maximize self-care, optimize quality of life, and gives children and parents a voice in the management of this potentially devastating disease.

Patient self-management tools in healthcare can improve effectiveness and efficiency of healthcare delivery and are increasingly used in the care of chronic disease.1 A widely reported example is the adult asthma passport; now broadly implemented and available for children.2, 3 Children’s passports are also available for epilepsy and chronic skin conditions. This is the first description in the world literature of a Children’s Glaucoma Passport.

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