Abstract
Genetic counsellors have been working in some European countries for at least 30 years. Although there are great disparities between the numbers, education, practice and acceptance of these professionals across Europe, it is evident that genetic counsellors and genetic nurses in Europe are working autonomously within teams to deliver patient care. The aim of this study was to use the Delphi research method to develop a core curriculum to guide the educational preparation of these professionals in Europe. The Delphi method enables the researcher to utilise the views and opinions of a group of recognised experts in the field of study; this study consisted of four phases. Phases 1 and 4 consisted of expert workshops, whereas data were collected in phases 2 and 3 (n=35) via online surveys. All participants in the study were considered experts in the field of genetic counselling. The topics considered essential for genetic counsellor training have been organised under the following headings: (1) counselling; (2) psychological issues; (3) medical genetics; (4) human genetics; (5) ethics, law and sociology; (6) professional practice; and (7) education and research. Each topic includes the knowledge, skills and attitudes required to enable genetic counsellors to develop competence. In addition, it was considered by the experts that clinical practice should comprise 50% of the educational programme. The core Master programme curriculum will enable current courses to be assessed and inform the design of future educational programmes for European genetic counsellors.
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References
Skirton H, Barnes C, Curtis G, WalfordMoore J : The role and practice of the genetic nurse: Report of the AGNC Working Party. J Med Genet 1997; 34: 141–147.
Skirton H, Kerzin-Storrar L, Patch C et al: Genetic counsellors: a registration system to assure competence in practice in the United kingdom. J Community Genet 2003; 6: 182–183.
Cordier C, Lambert D, Voelckel M-A, Hosterey-Ugander U, Skirton H : A profile of the genetic counsellor and genetic nurse profession in European countries. J Community Genet 2012; 3: 19–24.
Skirton H, Lambert D, Hosterey-Ugander U, Voelckel MA, O’Connor A : A study of the practice of individual genetic counsellors and genetic nurses in Europe. J Community Genet 2012; 4: 69–75.
Skirton H, Patch C, Voelckel M-A : Using a community of practice to develop standards of practice and education for genetic counsellors in Europe. J Community Genet 2010; 1: 169–173.
Keeney S, Hasson F, McKenna H : Consulting the oracle: ten lessons from using the Delphi technique in nursing research. J Adv Nurs 2006; 53: 205–212.
Mead DM : The use of the Delphi as a research approach. Nurse Res 2001; 8: 4–23.
Baker J, Lovell K, Harris N : How expert are the experts? An exploration of the concept of ‘expert’ within Delphi panel techniques. Nurse Res 2006; 14: 59–70.
Skirton H, Lewis C, Kent A, Coviello DA, Members of Eurogentest U: Committee EE: Genetic education and the challenge of genomic medicine: development of core competences to support preparation of health professionals in Europe. Eur J Hum Genet 2010; 18: 972–977.
European Association for Counselling: Counselling Supervision; accessed at: http://www.eacnet.org/indexphp?/Standards-and-Ethics/counselling-supervisionhtml accessed on 27 February 2012.
Bleakley A : The curriculum is dead! Long live the curriculum! Designing an undergraduate medicine and surgery curriculum for the future. Med Teach 2012; 34: 543–547.
Courtney-Pratt H, FitzGerald M, Ford K, Marsden K, Marlow A : Quality clinical placements for undergraduate nursing students: a cross-sectional survey of undergraduates and supervising nurses. J Adv Nurs 2012; 68: 1380–1390.
Nursing and Midwifery Council: Pre-registration Nursing Education in the UK. Nursing and Midwifery Council: London, UK 2010.
Acknowledgements
We acknowledge the support of the European Society of Human Genetics, which funded the travel and subsistence for workshop participants in Phase 4 of the study, and of Plymouth University, which provided facilities for the workshops in Phases 1 and 4.
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Skirton, H., Barnoy, S., Ingvoldstad, C. et al. A Delphi study to determine the European core curriculum for Master programmes in genetic counselling. Eur J Hum Genet 21, 1060–1066 (2013). https://doi.org/10.1038/ejhg.2012.302
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DOI: https://doi.org/10.1038/ejhg.2012.302
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