Table 4 The alphabet

From: Adaptation of a difficult-to-manage asthma programme for implementation in the Dutch context: a modified e-Delphi

A

Asthma (Dutch: astma). Is it asthma, what type of asthma and is it only asthma?

 

Items:

 

Has asthma been diagnosed according to the guidelines

Explanation what is difficult-to-manage asthma

Identification of patients with difficult-to-manage asthma

What is the difference between difficult-to-manage asthma and severe asthma

Role of different phenotypes of asthma

Which other tests should/could be performed other than symptoms and spirometry, to diagnose asthma

The role of comorbidity in asthma

How to assess different phenotypes of asthma in a patient

Differential diagnosis of asthma and which potential concurrent diagnoses require further investigation

Further insight into the potential consequences of a diagnosis of severe asthma (such as the use of biologicals, revalidation-therapy, high-altitude treatment..)

B

Bronchial triggers (Blootstelling). Allergens and irritants causing symptoms

 

Items:

 

Effect of smoking on asthma

Insight into allergens

Insight into nonspecific irritants

Role of passive smoking

Insight into occupational irritants

Insight into hobby-related irritants

Knowledge about the relation between symptoms and work

C

Asthma control (Controle). How to assess and monitor asthma control

 

Items:

 

Determining current control: ACQ, exacerbation rate, persistent obstruction

Content of monitoring in the individual patient

Role of the ACQ

Frequency of monitoring for the individual patient

Clear guidelines for referrals between primary and hospital care

Identification of patients suitable for pulmonary rehabilitation

D

Device (Device). Which device and how to use it?

 

Items:

 

Role of inhalation instruction

Assessment of adherence

Role of device type: match between patient and device

E

Exacerbations (Exacerbaties). How to prevent, detect and treat exacerbations

 

Items:

 

An asthma action plan for every difficult-to-manage asthma patient

Identification of patients with an increased risk

Definition of a (severe) asthma exacerbation

Recognition of causing agents of exacerbations

F

Pharmacotherapy (Farmacotherapie). Which types of medication for which individual patient

 

Items:

 

Denominate central role-inhaled corticosteroids

Patient perceptions on benefits and necessity of medication

Pharmacotherapy for specific subgroups: does comorbidity determine medication choices

Common side-effects different types of medication

G

General behaviour (Gedrag). How does behaviour and lifestyle influence asthma and how to modify it

 

Items:

 

Attention for physical activity

Role of weight

Recognition of stress-inducing factors

H

Help (Hulp). Strengthen the knowledge and determine who can aid a patient in disease management

 

Items:

 

Identification of obstacles for adherence (social, financial, societal)

Education on asthma

Insight into the patients' personal environment

I

Individualised care plan (Individueel Zorg Plan). How to create and use a self-management plan for each individual patient

 

Items:

 

Self-management for all people with (difficult-to-manage) asthma

Necessity of an individual care plan for all patients with (difficult-to-manage) asthma

Recognition and acceptance of personal limitations

Determining personal goals of treatment.

Identification of patients suited to different types of self-management: paper, online, real-life

How to make patients aware of asthma worsening events/behaviour

Estimation of desire and potential for behavioural changes

  1. Abbreviation: ACQ, asthma control questionnaire.
  2. Items in italic were deemed less relevant in round 3 of the modified Delphi procedure.