Table 4 Additional European strategies for addressing common barriers to genetic counselling aggregated from 64 individual strategies proposed in Phase I.
Strategy Number | Descriptive Text |
|---|---|
A1 | EU support for the creation and hosting of online genetic counselling educational materials to support counselling delivered face-to-face or by phone/video. |
A2 | EU support for the creation and hosting of online genetic counselling materials aiming to provide counselling in common pre- and/or post-test scenarios. |
A3 | EU-wide assessment of barriers and approaches to increasing the attractiveness of health professions and the retention of health professionals, both generally and specific to genetics. |
A4 | EU-led campaign to promote general genetics knowledge and awareness of genetic cancer/disease predispositions in the population. |
A5 | EU support (financial and/or regulatory) for generalised genetic counselling training and recognition pathways for existing health professionals (e.g. nurses, non-geneticist physicians, molecular biologists/pathologists). |
A6 | EU support for the creation and hosting of digital tools capable of securely and efficiently collecting family history and other cancer risk data from patients. |
A7 | EU regulation of direct-to-consumer genetic testing. |
A8 | Dedicated EU funding to support new genetic counselling training programs in Member States (e.g. continuing education for non-genetics health professionals; degree programs for genetic counsellors). |
A9 | EU-wide restriction of germline genetic testing to academic centres. |
A10 | Establish a European genetic literacy institute to lead the development of European initiatives. |
