Table 11 Types of protection against GD in the insurance sector and their strengths and limitations

From: Addressing genetic discrimination for stronger legal protections and enhanced public awareness

Use of genetic information (including family medical history) in insurance underwriting

Always permissible

Only voluntary disclosure is permissible

Always prohibited

Strength of protection against GD

Weak

Moderate

Strong

Advantages

✓ Lower regulatory burden

✓ Balances protection against GD with minimising industry pushback and adverse selection

✓ Simple to understand for consumers

✓ Makes people more willing to undergo genetic testing

Disadvantages

× Makes people less willing to undergo genetic testing

× Penalises those who know more

× Creates loopholes and inconsistancies

× Implicit pressures on consumers to submit their genetic information

× Creates information asymmetry that disadvantages consumers

× High regulatory burden

× Stronger adverse selection

× Undermines insurance industry’s profit

× Worsening genetic exceptionalism, the belief that genetic information must be treated differently from other types of personally identifiable information