Extended Data Table 9 Characteristics of participants associated with choosing to have genomic newborn screening

From: Feasibility, acceptability and clinical outcomes of the BabyScreen+ genomic newborn screening study

  1. Data is presented for participants who initiated study enrolment and provided demographic information (n = 1080). Univariate binomial logistic regressions were run separately for each variable to explore their effect on choosing to have genomic newborn screening. A binomial logistic regression was then performed with the variables that had a significant unadjusted effect on choosing to have genomic newborn screening. These variables included: age; parity; English as the main language spoken at home; Index of Relative Socioeconomic Advantage and Disadvantage; highest level of educational attainment; and experience with genetic testing.
  2. aParticipants whose newborns had genomic newborn screening.
  3. bParticipants who actively declined screening (n = 23), withdrew (n = 6), or were lost to follow-up (n = 64).
  4. c Including non-invasive prenatal screening, reproductive carrier screening, ancestry testing, or any other type of genetic testing.