Table 1 Demographic and disease characteristics of the participants

Personal factors

p1

Age, y

477 (100.0)

65.4 (12.4)

67 (57, 74)

p2

Sex, male

475 (99.6)

261 (54.9)

p3

Body mass index, kg/m²

465 (97.5)

21.4 (3.3)

21.2 (19.1, 23.7)

p4

Educational background, post-secondary

474 (99.4)

291 (61.0)

Medical factors

m1

Disease type, complex

466 (97.7)

330 (70.8)

m2

Disease duration, years

448 (93.9)

13.8 (11.0)

10.8 (6.0, 18.2)

m3

Number of common complications

402 (84.3)

0.6 (0.8)

0 (0, 1)

m4

Number of disease-related complications

402 (84.3)

0.5 (0.8)

0 (0, 1)

m5

Number of medications

467 (97.9)

4.4 (3.5)

4 (2, 6)

m6

Drugs for cerebellar symptoms, yes

435 (91.2)

284 (65.3)

m7

Drugs for Parkinsonism, yes

434 (91.0)

76 (17.5)

m8

History of falls within the past year, ≥ 1

458 (96.0)

365 (79.7)

Environmental factors

s1

Type of residence, home

475 (99.6)

444 (93.5)

s2

Environmental improvement, yes

467 (97.9)

367 (78.6)

s3

Cohabitation, yes

457 (95.8)

399 (87.3)

s4

Caregiver support, yes

436 (91.4)

384 (88.1)

s5

Work, yes

447 (93.7)

104 (23.3)

s6

Need for social support [0–10]

459 (96.2)

7.6 (2.5)

8 (6, 10)

s7

Satisfaction with social support [0–10]

456 (95.6)

5.6 (2.3)

5 (5, 7)

Impairments

i1

Ataxia [0–3], ≥ 1

471 (98.7)

468 (99.4)

2.4 (0.8)

3 (2, 3)

i2

Weakness [0–3], ≥ 1

473 (99.2)

419 (88.6)

1.8 (1.0)

2 (1, 3)

i3

Rigidity [0–3], ≥ 1

467 (97.9)

335 (71.7)

1.3 (1.1)

1 (0, 2)

i4

Spasticity [0–3], ≥ 1

462 (96.9)

294 (63.6)

1.2 (1.1)

1 (0, 2)

i5

Imbalance [0–3], ≥ 1

470 (98.5)

462 (98.3)

2.5 (0.8)

3 (2, 3)

i6

Malalignment [0–3], ≥ 1

466 (97.7)

290 (62.2)

1.1 (1.1)

1 (0, 2)

i7

Fatigue [0–3], ≥ 1

464 (97.3)

388 (83.6)

1.6 (1.0)

2 (1, 2)

i8

Pain [0–3], ≥ 1

452 (94.8)

193 (42.7)

0.8 (1.0)

0 (0, 2)

i9

Numbness [0–3], ≥ 1

446 (93.5)

150 (33.6)

0.6 (0.9)

0 (0, 1)

i10

Sensory disturbances [0–3], ≥ 1

467 (97.9)

268 (57.4)

1.0 (1.0)

1 (0, 2)

i11

Tremor [0–3], ≥ 1

468 (98.1)

289 (61.8)

1.1 (1.1)

1 (0, 2)

i12

Involuntary movements [0–3], ≥ 1

454 (95.2)

235 (51.8)

0.9 (1.0)

1 (0, 1)

i13

Orthostatic hypotension [0–3], ≥ 1

469 (98.3)

186 (39.7)

0.7 (1.0)

0 (0, 1)

i14

Poor sleep [0–3], ≥ 1

468 (98.1)

228 (48.7)

0.8 (1.0)

0 (0, 1)

i15

Respiratory disorder [0–3], ≥ 1

466 (97.7)

175 (37.6)

0.6 (0.9)

0 (0, 1)

i16

Speech dysarthria [0–3], ≥ 1

473 (99.2)

437 (92.4)

2.0 (1.0)

2 (1, 3)

i17

Dysphagia [0–3], ≥ 1

474 (99.4)

389 (82.1)

1.5 (1.0)

1 (1, 2)

i18

Visual impairment [0–3], ≥ 1

472 (99.0)

314 (66.5)

1.2 (1.1)

1 (0, 2)

i19

Urinary impairment [0–3], ≥ 1

472 (99.0)

294 (62.3)

1.3 (1.2)

1 (0, 2)

i20

Bowel impairment [0–3], ≥ 1

476 (99.8)

282 (59.2)

1.2 (1.2)

1 (0, 2)

i21

Cognitive impairment [0–3], ≥ 1

475 (99.6)

210 (44.2)

0.6 (0.8)

0 (0, 1)

i22

PHQ-2 score [0–6], ≥ 1

458 (96.0)

286 (62.4)

1.8 (1.8)

1 (0, 3)

Activity limitations

a1

mRS score [0–5], ≤ 2 (= independence)

461 (96.6)

110 (23.9)

3.4 (1.1)

4 (3, 4)

a2

Indoor mobility [1–5], ≥ 4 (= ambulatory)

461 (96.6)

165 (35.8)

3.6 (1.4)

4 (2, 5)

a3

Outdoor mobility [1–5], ≥ 4 (= ambulatory)

469 (98.3)

149 (31.8)

2.8 (1.3)

3 (2, 4)

a4

BI [0–100]

474 (99.4)

70.1 (36.6)

90 (45, 100)

a5

LSA score [0–120]

475 (99.6)

36.7 (28.4)

30 (17, 48.5)

Quantity of rehabilitation

r1

Types of rehabilitation implemented, ≥ 1

477 (100.0)

368 (77.1)

r2

Types of therapy, maximum of 3

477 (100.0)

1.3 (1.0)

1 (0, 2)

r3

Total rehabilitation time, min/month

477 (100.0)

543.4 (609.5)

320 (160, 720)

r4

Duration of rehabilitation, months

476 (99.8)

49.4 (64.0)

30 (2, 71.5)

r5

Types of rehabilitation program

477 (100.0)

5.9 (4.4)

5 (2.5, 9)

r6

Self-rehabilitation, yes

450 (94.3)

324 (72.0)

Quality of rehabilitation

r7

Effects of rehabilitation [0–10]

356 (96.7)

6.4 (2.4)

6 (5, 8)

r8

Self-efficacy of rehabilitation [0–10]

355 (96.5)

6.1 (2.5)

6 (5, 8)

r9

Satisfaction with rehabilitation [0–10]

354 (96.2)

6.5 (2.4)

7 (5, 8)

r10

Motivation for rehabilitation [0–10]

354 (96.2)

7.2 (2.4)

8 (6, 9)

Quality of life

q1

EQ index [0.00–1.00]

456 (95.6)

0.49 (0.23)

0.51 (0.31, 0.66)

q2

EQ-VAS [0–100]

440 (92.2)

57.9 (23.9)

60 (45, 78.5)

q3

Life satisfaction score [0–10]

456 (95.6)

5.1 (2.3)

5 (4, 7)