Table 2 Sailing-based intervention’s significant impact on HRQoL and psychological well-being (N = 8).

From: Feasibility and safety of sailing based rehabilitation for rare skeletal disorders using wearable sensors and patient reported outcomes

HRQoL & psychological well-being scales

Median score (min-max)

p valuea

Enrollment (T0)

Pre-intervention (T1)

Post-intervention (T2)

3-month follow-up (T3)

EQ-5D

VAS - Global Health

84.00

(50.00–99.00)

90.50

(45.00-100)

93.50

(70.00-100)

83.50

(50.00–99.00)

T0 vs. T2, p = 0.04**

T1 vs. T2, p = 0.10*

PODCI

Happiness

85.00

(55.00-100)

82.50

(40.00–95)

92.50

(40.00-100)

80.00

(55.00-100)

T1 vs. T2, p = 0.06*

Pain/Comfort

81.11

(46.11–100)

71.39

(47.78–100)

83.61

(49.44–100)

67.22

(38.33–93.33)

T0 vs. T2, p = 0.15

Global Functioning

84.68

(69.65–100)

86.71

(71.79–98.96)

86.40

(79.91–100)

85.73

(77.10–97.50)

T0 vs. T2, p = 0.15

T1 vs. T2, p = 0.15

YP-CORE

Psychological Distress

0.85

(0.10 − 2.70)

  

0.45

(0.10 − 1.60)

1.25

(0.60 − 2.30)

T0 vs. T2, p = 0.15

T2 vs. T3, p = 0.06*

TSK

Harm Subscale

11.00

(8–18)

  

12.00

(10–17)

8.00

(5–11)

T0 vs. T3, p = 0.03**

T2 vs. T3, p = 0.02**

Total Fear of Movement

21.50

(15–35)

  

22.50

(19–30)

18.50

(12–28)

T2 vs. T3, p = 0.10*

  1. a Comparisons of continuous variables were performed using the Wilcoxon signed-rank test.
  2. ** p < 0.05; * p < 0.10.
  3. 0.10 < p < 0.15: promising trends.
  4. ↑: improvement; ↓: worsening; ↔: promising trend.
  5. EQ-5D: EuroQol 5-Dimension questionnaire; PODCI: Pediatric Outcomes Data Collection Instrument; YP-CORE: Young Person’s Clinical Outcomes in Routine Evaluation; TSK: Tampa Scale of Kinesiophobia.