Cultural Influences on Dementia Caregiving Experiences
Summary
Cultural norms and values profoundly shape how individuals experience and deliver care to relatives with dementia. Beliefs about filial responsibility, perceptions of ageing and stigma around cognitive decline influence decisions to seek formal support or rely on family networks. Language proficiency, familial roles and religious affiliations further affect caregivers’ access to information and willingness to engage with services. Cultural expectations can both heighten stress, when carers feel compelled to sacrifice personal well-being, and foster resilience, through communal coping or faith-based networks. Understanding these influences is essential for designing interventions that respect cultural priorities, reduce barriers to support and improve outcomes for both caregivers and people living with dementia across diverse communities.
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Cultural Influences on Dementia Caregiving Experiences publication trend
The graph below shows the total number of articles in cultural influences on dementia caregiving experiences across all publications each year (not limited to Nature Index journals).
Technical terms
Cultural adaptation: The systematic process of modifying an intervention to align with the cultural values, language and practices of a target group.
Informal caregiver: An unpaid individual, often a family member or friend, who provides care to a person with dementia in a non-professional capacity.
FRAME (Framework for Reporting Adaptations and Modifications-Enhanced): A tool guiding the documentation of changes to evidence-based interventions across domains such as context, content and training.
Savvy Caregiver Program: An evidence-based training curriculum designed to equip dementia caregivers with stress management techniques and practical caregiving skills.
System Usability Scale: A standardised ten-item questionnaire generating a composite score to evaluate the usability of products or services.
References
- Examining cultural adaptations of the savvy caregiver program for Korean American caregivers using the framework for reporting adaptations and modifications-enhanced (FRAME). BMC Geriatrics (2024).
- A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study. JMIR Aging (2022).
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